Rare disease day is celebrated on the 28th of February every year. It is a day to bring awareness and support to Individuals who have a rare disease. This year will be the 12th edition of the awareness campaign.

The theme for the 2019 Rare disease day is “ Bridging health and social care”. The life of a rare disease patient and their family members mostly consists of: Taking medicines, Doctor appointments, continuous tests, physical therapy and having to use specialist equipment. Having to manage that life aside the normal day to day routines, such as work, school, and other family commitments can be very challenging.

The slogan of this year’s campaign: is Show Your Rare. Show You Care.


How you can get involved:

Take part in the social media campaign #ShowYouRare.

This can be done by following the steps below:


Arrow Icon 1. Paint your face with bright colours

Arrow Icon 2. Pose for a selfie

Arrow Icon 3.Post it on social media using the hashtags #ShowYourRare and #RareDiseaseDay


Take a look at the Info sheet to find out more here.

Every single voice makes a difference and can encourage at least one person to find out more and to see how they can help.

Help make a difference this Rare Disease Day.

References:

https://bit.ly/2CBDIMM

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