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Rare diseases in todays generation

rare disease day

In today’s generation, there are a lot of common diseases going around which are extremely scary. However, there is not a lot of light brought upon the several rare diseases which affect different people around the world daily.

What is a Rare Disease?

A disease is considered to be a rare disease when less than 200 000 people in the United States have it. These diseases are called Orphaned diseases. There are about 7000 different types- with that number growing continuously every day. A few of these rare diseases are Morgellons, Fields’ disease, Kuru and Von Hippel-Lindau.

Rare Disease Facts:

According to the Kakkis EveryLife Foundation, 95% have not one single FDA approved drug treatment.

International definitions vary. For example, in the UK, a disease is considered rare if it affects fewer than 50,000 citizens per disease. In the United States, a condition is considered “rare” if it affects fewer than 200,000 persons combined in a particular rare disease group.

30% of children with a rare disease will not live to see their 5th birthday.

During the first 25 years of the Orphan Drug Act (passed in 1983), only 326 new drugs were approved by the FDA and brought to market for all rare disease patients combined.

Approximately 50% of rare diseases do not have a disease-specific foundation supporting or researching their rare diseases.

Diseases such as malaria are quite common in some parts of the world but are considered rare in the United States. Other diseases such as Cancer or Alzheimer’s are not rare diseases as a whole, but certain forms of these diseases are considered rare.

If you want to know more about rare diseases and how you can get involved in Rare Disease Day, visit the link here.

References:
6 very rare diseases

Rare Disease Day

Medical Gap Cover Questions & Queries

A Gap Cover plan is what you can also get, in order to cover any medical aid in-hospital shortfalls. Having a medical aid is the first step, but even then, you might have to cover costs to cover the differences between what a doctor may charge over and above medical aid rates.

If you have any more queries or questions regarding anything related to TRA Gap Cover, why not reach out to our helpful specialists here. You can also visit our Gap Cover here.

Note: All material on this website is provided for your information only and may not be construed as medical advice or instruction. No action or inaction should be taken based solely on the contents of this information; instead, readers should consult appropriate health professionals on and matter relating to their health and well-being. The information and opinions expressed here are believed to be accurate, based on the best judgement available to the authors, and readers who fail to consult with appropriate health authorities assume the risk of any injuries. Errors and Omissions Excepted. Terms and Conditions Apply.

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